Report: More Somali Kids In Minneapolis' Preschool Program For Autism
schafer
schafer at sprynet.com
Tue Mar 31 17:56:59 PDT 2009
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Wednesday, April 1, 2009
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PUBLIC HEALTH
Report: More Somali Kids In Minneapolis' Preschool Program For Autism
LA Times: Vaccinations in California schools
Do You Vaccinate Your Children?
RESEARCH
Autism Skews Developing Brain With Synchronous Motion And Sound
PEOPLE
Autistic Boy's Arrest At School Fuels Debate On Discipline For Disabled
Kindergarten Teacher Who Voted Autistic Child Out Of Class Learns Her Fate
TREATMENT
Debate Over Drugs For ADHD Reignites Long-Term Benefit For Children at Issue
ADVOCACY
Rallying Call Over Autism Rights in UK
UK Public Health Threatens Pro Wakefield Website with Media Suit
MEDIA
Just Released! Healing and Preventing Autism
British DVD Takes Aim At Autism Cartoons Focus on Facial Expressions
COMMENTARY
New (And Improved?) IOM Panel to Convene on Vaccines
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PUBLIC HEALTH
Report: More Somali Kids In Minneapolis' Preschool Program For Autism
Investigators said they were not able to determine if the numbers are merely
a statistical blip or reflect a deeper problem.
By Maura Lerner, Star Tribune is.gd/pW6D
The Minnesota Department of Health today confirmed what Minneapolis
school officials have long suspected: that there's a "significantly higher"
proportion of Somalis than others in the city's preschool programs for
autism.
But it still doesn't know why.
In a 116-page report released today, the health department said the
findings raise more questions than answers, and that "it is not proof that
Somali children have more autism than other children."
The investigators said they were not able to determine if the numbers
are merely a statistical blip or reflect a deeper problem.
"We recognize this study is only the first step on a very long
journey," said Dr. Sanne Magnan, the commissioner of health, in a letter
accompanying the report. She said that much more research will be needed to
solve the mystery.
The health department launched its investigation last fall, after
Minneapolis school officials and parents raised concerns about the
disproportionate number of Somali children in the city's early-childhood
autism program. Those reports made headlines around the country, in part
because an unusual cluster of cases might shed light on what causes autism.
Do data reflect all children?
In today's report, however, officials said there was no precise way to
compare autism rates among Somali and non-Somali children, because no
precise medical data exist. So they focused instead on the school data used
to identify children for special education.
The investigation found that, among 3- and 4-year-olds in Minneapolis,
Somali children were two to seven times more likely than others to be in
special classes for autism, a brain disorder linked to behavior problems.
The report estimated that 0.9 to 1.5 percent of Somali children in
that age group were in autism-related classes, compared to 0.2 to 0.7
percent of non-Somalis, between 2005 and 2008.
+ Read more: is.gd/pW6D
. . .
LA Times: Vaccinations in California schools
is.gd/pWqg
Times staff writer Ron
<http://www.latimes.com/news/local/la-me-immunizationquestions-form,0,723823
.special> Lin and data analyst Sandy Poindexter reported
<http://www.latimes.com/news/local/la-me-immunization29-2009mar29,0,3148179.
story> Sunday on the growing number of California parents who are sending
their children to school without inoculations for childhood diseases.
The Times found that vaccine exemptions for kindergartners -- which
allow them to enroll without having state-mandated immunizations -- had more
than doubled in the last decade, leaving hundreds of schools in the state
vulnerable to outbreaks.
The rise in unvaccinated children appears to be driven by affluent parents
choosing not to immunize. Many do so because they fear the shots could
trigger autism, a concern widely
<http://www.journals.uchicago.edu/doi/full/10.1086/596476> discredited in
medical research.
The report sparked intense reactions both from those who believe
vaccines are harmful and from others upset that a rising number of parents
are opting out of immunizations. Check out your local schools using The
<http://www.latimes.com/news/local/la-schools-storylevel-immunization,0,2920
971.teaser> Times schools database and use our
<http://www.latimes.com/news/local/la-me-immunization29-2009mar29-map,0,4267
76.htmlstory> interactive map to see which Southern California school might
be at risk.
Keep reading to see answers to:
"What are autism rates among immunized versus non-immunized children?"
"I don't understand why an 'outbreak' is being 'triggered' if the vast
majority of students (and others) HAVE been vaccinated."
"Can you please explain what risk the kids without the shots are to the kids
that have had all their shots?"
"If people choose to immunize their own children, what is it that they are
worried about?"
"What do medical professionals say about advising pregnant women not to eat
food high in mercury and then giving babies vaccines that contain mercury?"
+ Read more: <http://is.gd/pWqg> is.gd/pWqg
. . .
Do You Vaccinate Your Children?
is.gd/pWAW
Some people, including a Hoboken couple, believe vaccinations can do
more harm than good. Next month, a Hoboken bar owner and her husband will
hold an event to talk about "vaccines and health freedom rights."
Here is their press release:
"The New Jersey Senate and Assembly are taking a close look at the
Conscientious Exemption to Mandatory Immunization, Assembly bill 260 and
Senate bill 1071. Pressured by an increasing number of parents and citizens
concerned about the health risks of too many shots being forced on their
children by the state, New Jersey legislators are at the center of a
national debate that is not going away. 'Vaccination is one of the most
significant health decisions that parents make on behalf of their children,'
says Louise Kuo Habakus, a Middletown resident, leading member of the New
Jersey Coalition for Vaccination Choice, (NJCVC), and a parent of two
vaccine-injured children. On Sunday, April 26 at 4 p.m., Nine Lounge in
Hoboken will host Habakus who will lead a seminar on informed consent in
vaccination. The seminar, entitled 'A Vaccination Seminar: What Choices Do
Parents Have?' is designed to help educate New Jersey residents on the
choices available to them when making informed vaccination decisions.
"Melanie Dragone and her husband own Nine, a bar and lounge in
Hoboken, which is hosting the event. A mother of two and licensed social
worker, Dragone states, 'I urge all parents to devote time to the research
of vaccinations. As medical consumers, we have the right to ask questions of
our health care providers and even to refuse state- mandated medical
procedures. To make informed decisions for our families, we need to be
empowered with the facts and weigh the risks and benefits of each vaccine.'"
"According to Dr. Lawrence Rosen, a board-certified pediatrician and
Chief of Pediatric Integrative Medicine at Hackensack University Medical
Center, 'There are risks associated with all medical practices, including
vaccines, so it is important for parents, along with their doctors, to
evaluate an individual child's medical history and health, including genetic
predispositions and allergies, to determine what is appropriate. Informed
consent is a key ethical principle in medical practice.'"
"The controversy remains a front burner issue for parents. On February
12, officials with the U.S. Court of Claims ruled against the first three of
5,500 claims of parents with autistic children, affirming that vaccines are
not to blame for their children's neurological disorder. Just one year ago,
the federal Vaccine Injury Compensation Program compensated the Poling
family after concluding that vaccines caused Hannah Poling's autism. And on
Feb. 25, it was disclosed that the Banks family received compensation in
2007 after it was determined that the brain damage caused by the MMR vaccine
caused Bailey Banks' autism. Parents find these conflicting verdicts and
delayed news stories confusing. They are searching for answers on their own
and with the help of local organizations such as the New Jersey Coalition
for Vaccination Choice, of which Louise Kuo Habakus is a member."
"Louise Kuo Habakus is a board-certified health practitioner and a
former senior corporate executive. If you are interested in attending one of
her talks, sponsoring a seminar or film in your community or being added to
her distribution list, please send an e-mail to vaxRSVP at verizon.net. You can
also hear Louise speak in Cherry Hill, NJ at the USAAA conference (5/2).
+Read more: www.njvaccinationchoice.org
<http://www.njvaccinationchoice.org/> .
. . .
RESEARCH
Autism Skews Developing Brain
With Synchronous Motion And Sound
From sciencedaily.com. is.gd/pDGK
Individuals with autism spectrum disorders (ASD) tend to stare at
people's mouths rather than their eyes. Now, an NIH-funded study in
2-year-olds with the social deficit disorder suggests why they might find
mouths so attractive: lip-sync-the exact match of lip motion and speech
sound.
Such audiovisual synchrony preoccupied toddlers who have autism, while
their unaffected peers focused on socially meaningful movements of the human
body, such as gestures and facial expressions.
"Typically developing children pay special attention to human movement
from very early in life, within days of being born. But in children with
autism, even as old as two years, we saw no evidence of this," explained Ami
Klin, Ph.D., of the Yale Child Study Center, who led the research. "Toddlers
with autism are missing rich social information imparted by these cues, and
this is likely to adversely affect the course of their development."
Klin, Warren Jones, Ph.D., and colleagues at Yale, report the findings
of their study, funded in part by the National Institute of Health's
National Institute of Mental Health, online March 29, 2009 in the journal
Nature.
For the first time, this study has pinpointed what grabs the attention
of toddlers with ASDs," said NIMH Director Thomas R. Insel, M.D. "In
addition to potential uses in screening for early diagnosis, this line of
research holds promise for development of new therapies based on redirecting
visual attention in children with these disorders."
A eureka moment in the research came when researchers followed up on a
clue from children's responses to audiovisual synchrony embedded in a
nursery rhyme cartoon.
While it was known that people with autism do not spontaneously orient
to social signals, it was unclear what early-emerging mechanism may
contribute to that. Nor was it clear exactly what they were attending to
instead. To find out, Klin, Jones and colleagues tracked the eye movements
of two-year-olds with and without the disorder while they looked at cartoon
animations on split-screen displays.
The researchers borrowed a technique from the video game industry,
called motion capture. They then reduced the movements to only points of
light at each joint in the body, like animated constellations. These
cartoons played normally - upright and forward - on one half of the screen,
but upside-down and in reverse on the other half. The inverted presentation
engages different brain circuits and is known to disrupt perception of
biological motion in young children. The normal soundtrack of the actor's
voice, recorded when the animations were made, accompanied the
presentations.
Eye-tracking data initially showed that 21 toddlers with ASD had no
preference for the upright animations, looking back and forth between the
two. By contrast, 39 typically-developing toddlers and 16 developmentally
delayed but non-autistic toddlers clearly preferred the upright animations.
+ Read more: is.gd/pDGK
. . .
PEOPLE
Autistic Boy's Arrest At School Fuels Debate
On Discipline For Disabled
By Christina E. Sanchez for The Tennessean.
is.gd/pYhe
Portland - Cindy Gaspard knew something was different about her son,
Dylan, when he was 6 months old.
As an infant, he would line up toys in a row and throw a fit if the
order was disrupted. He didn't like to be held. He couldn't speak until he
was 3.
Dylan was diagnosed at age 7 with autism, a brain disorder that
affects communication and social interaction. For Gaspard, the finding
explained years of communication problems and outbursts, and helped her
learn how to deal with many of his behaviors and to fight for services for
her son.
She is fighting for him again.
Dylan, a sixth-grader enrolled in a special-needs program in Sumner
County schools, was recently handcuffed, arrested and put in juvenile
detention after an outburst in school. He was charged with two counts of
assault for biting and scratching teachers.
"I disagree with court or jail as a placement for a mentally
challenged child, when what he clearly needs is psychiatric treatment,"
Gaspard said of her 12-year-old son. "For Dylan, sitting in jail meant
nothing to him. Treatment and assistance at a hospital will help him attain
the skills he needs."
The case reflects an ongoing debate in Tennessee: How should school
officials handle and defuse behavioral outbursts of developmentally disabled
students at school?
Federal law prevents school officials from discussing students' cases,
said district spokesman Jeremy Johnson.
But he said school district policy is that police will be called for
children under certain circumstances, including when the child leaves school
grounds, when the child's behavior cannot be controlled by teachers, and
when a crime is committed.
"When a child is admitted to the therapeutic intervention program,
parents are notified that we could have to call police," Johnson said.
Dylan, who has been in the hospital for a psychological evaluation
since the episode on March 9, is not the first child with developmental
disabilities to be arrested.
"Statewide, we have had several cases of children with disabilities
being arrested and being taken to Juvenile Court for behaviors in school,"
said Sherry Wilds, staff attorney for the Tennessee Disability Law and
Advocacy Center. "It's the answer a lot of systems have."
. . .
Kindergarten Teacher Who Voted Autistic Child Out Of Class Learns Her Fate
is.gd/pXRn
St. Lucie County, Fla. - The St. Lucie County teacher who let her
students vote a 5-year-old autistic boy out of class has lost her appeal.
Morningside Elementary teacher Wendy Portillo has been suspended
without pay for one year and has lost her tenure.
Tuesday's ruling upholds the St. Lucie County School Board's decision
in November. Portillo has been on unpaid suspension since then.
Last year, she gained national attention for kicking Alex Barton out
of class for being disruptive. Portillo said she did not mean to harm or
embarrass him.
. . .
TREATMENT
Debate Over Drugs For ADHD Reignites Long-Term Benefit For Children at Issue
By Shankar Vedantam for the Washington Post. is.gd/pi8K
New data from a large federal study have reignited a debate over the
effectiveness of long-term drug treatment of children with hyperactivity or
attention-deficit disorder, and have drawn accusations that some members of
the research team have sought to play down evidence that medications do
little good beyond 24 months.
The study also indicated that long-term use of the drugs can stunt
children's growth.
The latest data paint a very different picture than the study's
positive initial results, reported in 1999.
One principal scientist in the study, psychologist William Pelham,
said that the most obvious interpretation of the data is that the
medications are useful in the short term but ineffective over longer periods
but added that his colleagues had repeatedly sought to explain away evidence
that challenged the long-term usefulness of medication. When their
explanations failed to hold up, they reached for new ones, Pelham said.
"The stance the group took in the first paper was so strong that the
people are embarrassed to say they were wrong and we led the whole field
astray," said Pelham, of the State University of New York at Buffalo. Pelham
said the drugs, including Adderall and Concerta, are among the medications
most frequently prescribed for American children, adding: "If 5 percent of
families in the country are giving a medication to their children, and they
don't realize it does not have long-term benefits but might have long-term
risks, why should they not be told?"
The disagreement has produced a range of views among the researchers
about how to accurately present the results to the public. One e-mail noted
that an academic review of the group's work, called the Multimodal Treatment
Study of Children With ADHD (MTA), asked why the researchers were "bending
over backward" to play down negative implications for drug therapy.
Peter Jensen, one of Pelham's fellow researchers, responded that
Pelham was biased against the use of drugs and was substituting his personal
opinion for science.
Jensen said Pelham was the only member of the team of researchers who
took away "the silly message" that the study raised questions about the
long-term utility of drugs, but interviews and e-mails show that Pelham was
not alone.
+ Read more": is.gd/pi8K
. . .
ADVOCACY
Rallying Call Over Autism Rights in UK
Autistic disorders are often diagnosed in childhood
From news.bbc.co.uk. is.gd/pWdG
Politicians are being urged to recognise the need for legislation to
protect the rights of the 20,000 people affected by autism in Northern
Ireland.
A rally will be held at Stormont later promoting Autism Awareness Day
on Thursday.
On Tuesday, the Assembly is expected to debate the condition.
The chief Executive of Autism NI, Arlene Cassidy, said existing
legislation did "not allow for autism" and did "not recognise autism".
"Parents are having difficulties in accessing benefits such as
disability living allowance for example," she said.
"They are having problems in accessing social opportunities that would
be open to other groups because there is a lack of awareness."
. . .
UK Public Health Threatens Pro-Wakefield Website with Media Suit
The One Click Group Reponse; Professor David Salisbury Threatens Legal
Action
is.gd/pWkf
On 26 February 2009, Professor David Salisbury, Head of Immunisation
at the UK Department of Health, instructed Blake Lapthom, a firm of
solicitors based in Eastleigh, to initiate legal proceedings against The One
Click Group unless we comply with the following: The removal from our
website of the MMR Vaccine - GMC Formal Complaint submitted to the General
Medical Council by grandfather Bill Welsh and the article entitled To
Encourage the Others written by investigative writer Martin J Walker.
Salisbury not only wants these evidence based factual documents removed from
the website, he also wants One Click to apologise to him for having the
temerity to publish them. Both these papers deal with vaccine damage that
has now reached epidemic proportions in Britain and around the world today.
+ Read more: is.gd/pWkf
. . .
MEDIA
Just Released! Healing and Preventing Autism
By Jenny McCarthy and Dr. Jerry Kartzinel
From Generation Rescue. is.gd/pWaY
Jenny McCarthy has teamed up with Dr. Jerry Kartzinel, the doctor who
recovered her son, to write Healing and Preventing Autism. Their new book
provides all the necessary information about biomedical treatment from
diagnosis, dietary interventions and environmental changes for the home, to
advanced therapies that doctors use today.
Spring is the season of hope, renewal and life. There's no better time
to read Healing and Preventing Autism. Why not give a copy to your child's
doctor and teachers too? Order your copies Barnes & Noble is.gd/pWbJ and
Amazon is.gd/pWbW. If you've read the book, please leave a review at B&N
and Amazon.
Here's the media tour for Jenny and Dr. Kartzinel. Go to Generation
Rescue for updates.
Los Angeles Friday, March 27 4:00 (Taping) Access Hollywood (interview
to air 4/1) New York Tuesday, March 31 9:00AM- 12:00PM - ABC Radio Tour
+ Read more: is.gd/pWaY
. . .
British DVD Takes Aim At Autism Cartoons Focus on Facial Expressions
is.gd/pW9v
Happy, worried, surprised, ashamed: Children with autism can find it
difficult to discern from facial expressions how another person is feeling.
A team of researchers at Britain's Cambridge University has created an
animated DVD called "The Transporters" to help children with autism learn
this important social skill.
"Very rule-based kids with autism get fascinated by patterns and get a
lot of pleasure from repetition," said psychologist Simon Baron-Cohen, the
director of Cambridge's Autism Research Centre. They often enjoy vehicles,
particularly those that move predictably along tracks, such as cable cars
and trains.
"The Transporters" are eight cartoon vehicles with human faces.
"As they're watching the mechanical aspects, without realizing it they
would be exposed to faces to learn about emotions," says Baron-Cohen.
The DVD features 15 episodes with quizzes at the end. Each episode
focuses on a few emotions, starting with such basics as happiness, sadness
and anger.
In the first episode, William the ferry beams as he takes his friend
Charlie across the harbor. The narrator says, "William was happy," and the
camera repeatedly shows William's smiling face. Later episodes deal with
more complex emotions, such as jealousy, when Oliver the funicular railway
envies Jennie the tram, who gets to stop at traffic lights.
The U.K. government gave Baron-Cohen and his team a grant to produce
the DVD (available at www.thetransporters.com
<http://www.thetransporters.com/> ) and distribute 40,000 free copies. It is
appropriate for children with autism up to about 8 years old.
The Autism Centre performed a one-month evaluation of the efficacy of
"The Transporters." Seventeen children with autism and Asperger syndrome
were encouraged to watch the DVD for 15 minutes every day. The children's
ability to recognize emotions improved significantly over a group of 17
children with autism who did not watch the video. Some had even caught up to
the ability levels expected of non-autistic children of the same age.
Baron-Cohen says he has also received lots of positive e-mails from
parents, which he found reassuring.
"Our biggest fear was we would develop something that children would
hate," he said.
. . .
COMMENTARY
New (And Improved?) IOM Panel to Convene on Vaccines
From the ageofautism.com. is.gd/pXLe
AoA Editor's note: The IOM is at it again. Julie Obradovic raises
some important questions below about the role and accountability of one IOM
staffer who has worked on previous vaccine safety reviews, reviews that have
shown a greater concern for politics than the truth. (Dr. Stratton:...The
point of no return, the line we will not cross in public policy is pull the
vaccine, change the schedule. We could say it is time to revisit this, but
we would never recommend that level. Even recommending research is
recommendations for policy. We wouldn't say compensate, we wouldn't say pull
the vaccine, we wouldn't say stop the program (p.74).) Although it has
branded itself as a kind of "science court" for controversial issues, the
IOM's performance as a trustworthy tribunal has been poor: when the rules of
jurisprudence are unlikely to lead to the outcome the sponsors and the
staffers have been looking for, the IOM changed the rules instead of taking
the heat. In October 2006, a few members of the autism community met with
IOM President Harvey Fineberg to share a blistering critique. A short
version of the materials we presented is here tinyurl.com/cju3dh and a
longer version here tinyurl.com/cqtq5s. Mark Blaxill
By Julie Obradovic
A New IOM Panel On March 20, 2009 the Institute of Medicine
officially notified the public of the provisional appointment of a new IOM
Committee related to vaccines. The committee was contracted by HRSA to
review epidemiological, clinical and biological evidence regarding adverse
health events associated with specific vaccines covered by VICP (Vaccine
Injury Compensation Program). Vaccines to be reviewed include Varicella
Zoster, Influenza, Hepatitis B, and HPV; additional vaccines could be added
to the review if more funding is secured.
The committee will author a consensus report with conclusions on the
evidence bearing on causality and the evidence regarding the biological
mechanisms that underlie specific theories for how a specific vaccine is
related to a specific adverse event. The provisional appointments to the
IOM's new Committee to Review Adverse Events to Vaccination have been posted
on the Current Project System on the National Academies Website. There is a
20 day period for formal public comment beginning the day of this notice.
The project will be directed by Dr. Kathleen Stratton.
Who is Dr. Stratton? If Dr. Stratton's name looks familiar it is
because this is not the first time she has served on an IOM committee
regarding vaccines. In fact, Dr. Stratton has served on several IOM panels,
most famously perhaps as project director for the panel that reviewed the
role of Vaccines in Autism (2004). In this instance the panel she directed
came to the conclusion the evidence favored rejection of a causal
relationship; even more, her committee went so far as to suggest further
study of the relationship wasn't warranted.
Transcripts of several closed door meetings between Dr. Stratton,
other members of the IOM committee, and CDC representative Dr. Marie
McCormick suggest that the CDC, who funded the study, was not an independent
body during the review but rather the architect, and furthermore, that their
conclusion was pre-determined. It has been the subject of intense scrutiny
since.
Information revealed in the transcripts demonstrates a substantial
change in policy throughout the panel's process, including (but not limited
to) raising the burden of proof from biological plausibility to providing
specific biological mechanisms of causation; omitting specific literature
and research from review; and relying on epidemiology for causality when it
was previously noted in a 1994 IOM panel (that Stratton served on) that it
was not necessary to have epidemiological causation to demonstrate
causation.
Most alarming was the apparent level of influence CDC had over the
direction and conclusion of the report. The following statements made by Dr.
Stratton and Dr. McCormick serve as only some of the reason for criticism by
parental groups and advocacy organizations.
Dr. Marie McCormick:...[CDC] wants us to declare, well, these things
are pretty safe on a population basis (p.33).
Dr. Stratton:...The point of no return, the line we will not cross in
public policy is pull the vaccine, change the schedule. We could say it is
time to revisit this, but we would never recommend that level. Even
recommending research is recommendations for policy. We wouldn't say
compensate, we wouldn't say pull the vaccine, we wouldn't say stop the
program (p.74).
Dr. McCormick:...we are not ever going to come down that [autism] is a
true side effect...(p.97).
-IOM Committee Meeting, 1/12/2001 Closed-Door Meeting Transcript
+ Read more: is.gd/pXLe
Note: The opinions expressed in COMMENTARY are those of the author and
do not necessarily represent the views of the Schafer Autism Report.
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